2016Zeitschriftenartikel DOI: 10.18452/18183
When Care Strikes Back
Some Strategies and Tactics for Dealing with Ambivalence of Visibility in Chronic Illness
Building on the works of sociologists of health and illness that have highlighted the effects of visible difference and stigmatisation since Goffman, this article examines the ambivalence of visibility experienced by people with cystic fibrosis (CF), a fatal chronic disease and the artful tactics they employ in carving out a habitable space in an ableist world. Dealing with the ambivalence of being at once inherently ill and apparently healthy is a process of giving constant care and attention to one’s body and its presence in public, and if successful, enabling those affected by it to acquire a new – albeit temporary – healthy self with the help of therapy.
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