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Investigating Emerging Biomedical Practices. Zones of Awkward Engagement on Different Scales
This special issue of Science, Technology, & Human Values critically explores a new stage in which the life sciences and biomedical practices have entered. This new stage is marked by postgenomic developments and an increased ...
Participatory prognostics in Germany
Developing citizen scenarios for the relationship between biomedicine and the economy in 2014
The rapid development of biomedicine demands a trustworthy, proactive regulatory regime that is able to manage progress with genuine regard for ethical, social and legal concerns. With its recent past of eugenics and ...
When Care Strikes Back
Some Strategies and Tactics for Dealing with Ambivalence of Visibility in Chronic Illness
Building on the works of sociologists of health and illness that have highlighted the effects of visible difference and stigmatisation since Goffman, this article examines the ambivalence of visibility experienced by people ...
How to Study Chronic Diseases—Implications of the Convention on the Rights of Persons with Disabilities for Research Designs
Background The Convention on the Rights of Persons with Disabilities (CRPD) has been received considerable attention internationally. Methods The Convention’s main arguments are conceptually analyzed. Implications ...